Monday, May 22, 2017

The Rebel Patient: DEDICATED To Drs. Amy Reed, Hooman Noorchashm, and SlaySarcoma.com

The Rebel Patient book is dedicated to Amy Reed, MD, PhD, and her advocate husband, Hooman Noorchashm, MD, PhD, for being tireless voices for patient safety, women's health, and advocacy for those who either lost their voices or weren't being heard. They spearheaded a compelling fight for patient safety that was waged by the power morcellator medical device used in routine gynecologic hysterectomy. 


Sparked and glittering with lots of God's light amidst the suffering, Amy just celebrated Mother's Day AT HOME with her six beautiful children!


During laparoscopic surgery, the morcellator device was inserted through small abdominal slits, to chew up, grind up, and then unavoidably splat the abdominal wall with potential cancer cells. And in Amy's case, cancer is cancer and the statistics don't matter if it happens to you. No statistic is worth the iatrogenic up staging of cancer to a 'metastatic' spread of impending doom. Yet Amy, most thankfully to God, is a survivor who has lived to tell more than just a tale of patient safety, women's health advocacy and medical marvel.

The story of these brave and relentless people is one of love and morals. Besieged with a fateful blow after going in for routine gynecologic surgery, up staged with aggressive cancer that was inflicted by the surgeon(s) who did her case, then denied medical standards in place to prevent future deaths by morcellation, her story still wasn't over. She won't stop fighting. Her husband won't stop advocating. And we are so grateful for that!

A love story and patient battle rages on, in a frequently-updated Change.org petition that we have been promoting for three years.

The Rebel Patient will donate a portion of book sale proceeds to SlaySarcoma.comfor research on the aggressive leiomyosarcoma. Their site says,

"Together, we can make a difference.

In October of 2013, Amy Reed, a physician and mother of six underwent surgery for what her doctors believed were uterine fibroids.  Eight days later she received a call no one ever wants to get.  "The pathology came back—you have cancer."  Amy was diagnosed with leiomyosarcoma just a year after the birth of her youngest child.  This cancer, which can masquerade as a fibroid, is aggressive, and often resistant to common cancer treatments such as chemotherapy and radiation." 

YOU CAN HELP:

  • You can donate to slay sarcoma here.
  • You can sign the Change.org Petition here.
  • You can Join The Good Doctors' thank-you to those who saved Amy's Life by performing CPR for 50 minutes, putting her on a bypass machine, operating on a large abdominal tumor and resuscitating from bleeding (see dedication video here), then recovering her in the UPenn SICU so that she could: 

...defy all odds and Celebrate Mother's Day 2017 with her Six Beautiful Children! 

What a Reminder:
Never Underestimate the Power of God!

  • Go to June 17, 2017 Luncheon to Benefit Cancer Research via SlaySarcoma.com!


SLAY SARCOMA!


  • And Slay Sarcoma!
  • Oh! And tell all your friends NOT TO USE THE MORCELLATOR for gyn surgery, because it's not worth the risk to lose your life like other women have!

We believe in the value of every breath and the benefit of each pen stroke waged by Dr. Hooman Noorchashm in support of his bride and mother of his children! We believe there's no stronger advocate in the US who has been a stellar star advocate for a patient! To this end, we are happy to announce that a portion of each sale of The Rebel Patient book will be donated to SlaySarcoma.com in pursuit of efforts to advance cancer research of the uterus. 


There is a formal Dedication to the good doctors, Amy Reed, MD, PhD and Hooman Noorchashm, MD, PhD, to Slay Sarcoma research located in the opening pages of The Rebel Patient.

  • You can get The Rebel Patient book at SaySaga Inspirational Book Music & Art Publishing, Ltd. - See here. PRE-ORDER the Special 3-Pack BE HAPPY BUNDLE for $0.99 
  • Offer Expires June 12, 2017.
  • Book Launch is June 13, 2017.

who went through 27 doctors, ridicule, accusations of "malingering" (faking), and a near-death experience before getting a diagnosis of dysautonomia. She teaches you how to fight, how doctors think, and how you can maximize the healthcare system for your own quality of life. Many thanks to SaySaga Inspirational Book Publishing for making this book possible.


"Father God,
We ask your continued blessings to abound in this family, and an outpouring of helpers and research supporters to be established and maintained." ­čÖî 

Won't you help?

                    Why?

                                                 Because no one can tell us when it's our time to die.

We have to fight to live. And we need your help now.

... and God Bless You.

Saturday, March 18, 2017

Positively Persevering: 10 Health Benefits of a Good Hug

Positively Persevering - One Hug at a Time!

You do need to actually Pass it Along, because all Hugs are Shared!
and ... 

Did You Know?

Hugging heart-to-heart, with chests touching, for 30 seconds or so .... that's as good for you as exercise and vegetables, some say! Read on for specifics:

10 Health Benefits of a Real Hug

  1. Releases the bonding, 'happy' hormone oxytocin from the brain
  2. Relaxes the muscles, releasing tension
  3. Decreases depression and anxiety
  4. Decreases blood pressure and heart rate
  5. Decreases stress hormone levels of cortisone and norepinephrine
  6. Decreases stress after heart attack
  7. Decreases stress after stroke
  8. Improves pain tolerance
  9. Improves immune function, with fewer and less severe colds
  10. Improves school and work performance

And by the way, those non-affectionate hugs? They don't do. 
The hug has to be nice and firm, a real hug!











Friday, March 10, 2017

Friday, February 17, 2017

Guzelim (My Beautiful) by Selim Yeniceri


I found another music video by Selim Yeniceri.
Passionate. Riveting.


MORE:



...and a new book, DREAM TIGER!



...and FREE MP3 "I am the Storm!"

Krallarin Yolu (Road of The Kings) by Selim Yeniceri


Once again I am amazed this song came out 20 years ago!
This would have been a huge hit in L.A. or virtually anywhere in the USA...
Art by Selim Yeniceri included here, too!

OMGosh we have these Selim Yeniceri songs now:





...and a new book, DREAM TIGER!



And I keep asking, "What's Next?"
Production is at an all-time high!


...and don't forget to pick out your FREE MP3 on "I am the Storm!" single by Selim Yeniceri




"Truth Hidden in The Stars" by @SelimYeniceri #NewMusic #music #life


Selim Yeniceri does it again!
New Music Friday right as the carriage is about to turn in to a pumpkin!

With the previous post, he brought us "Hammer (Takes a Goblet)" with a stunning array of musical intruments and Turkish flora that spawned the dawn of a new age in instrumental music video. Real life. 
I don't even know where to start talking about the real life episodes buried within this song.
Too many people I know can relate to this, and I'm sure it will be very therapeutic.

And I know Selim Yeniceri's new book, Dream Tiger, is COMING SOON!

...and there's the FREE MP3 - "I Am The Storm!"

With Selim Yeniceri, there's always something more!



Take a breath and absorb!





...and a new book, DREAM TIGER!

...and don't forget to pick out your FREE MP3 on "I am the Storm!" single by Selim Yeniceri

Thursday, February 16, 2017

Hammer (Shapes The Goblet) by @SelimYeniceri #NewMusic #music #life



Selim Yeniceri's new music is amazing and captivating - you'll see!

Refreshing, original, and on a different scale than with his other pieces, Selim Yeniceri sets himself apart as a detailed artist weaving native Turkish instruments, costume, flora, and photography into the tune as it drifts amongst it all! So reviving!

I highly recommend this to my friends with chronic illnesses, invisible disabilities and chronic pain or the chronic life. And certainly all The Rebel Patients will love this enticement with nature, too.

I'll go get more information on this. There's bound to be more than just this piece...
Stay tuned!
~ ~ ~ ~ ~
ADDENDUM:

Of course, there is much more and it's "New Music Friday"
so hold on to this ride together as we see a new rock star budding!

Take a listen and be refreshed!







...and a new book, DREAM TIGER!

...and don't forget to pick out your FREE MP3 on "I am the Storm!" single by Selim Yeniceri