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Tuesday, October 23, 2012

Invisible No More

by Dr. Margaret Aranda 

2/5/2014: Featured as Contest Winner #2 for story on "Health Care: Social Media Review".
Focus: Emotional and psychological effect of medicine.
I'm ROARING for all of us, so keep up the fight! Share! Tweet!
Be proud that we are hitting the media again!


There are millions of women (mostly) who are young and sick. They are my friends. They don't have cancer or leukemia, and it's not all in their heads.  They have diagnoses that are not "usual".  They have Invisible Illnesses that stump the doctors over and over again.  They are disabled, unable to get out of bed, unable to take a shower, unable to shop for groceries, unable to don a pair of high heels and go out on a date on a Saturday night.  Some of these girls may have good memories of a Prom night, but many won't, because they were too sick to go.



Most of them were previously healthy, many of them were previous athletes, and virtually all of them are misunderstood.  Doctors, parents, friends, and neighbors are frustrated because everything looks okay on the outside. My friends are tired of hearing, "But you look good."

They complain of being unable to stand up without fainting (dysautonomia), being unable to eat without throwing up (gastroparesis), they have no energy for daily living (mitochondrial disease), they have severe fatigue (Lyme's Disease, Chronic Fatigue Syndrome), excruciating pain (fibromyalgia), or they are severely tachycardic upon standing (postural orthostatic tachycardia syndrome, or POTS).  They have unexplained and severe headaches and nausea (Chiari Syndrome, Intracranial Hypertension, and Hydrocephalus), extremity pain (Reflex Sympathetic Dystrophy), they vomit when they smell your cologne (Multiple Chemical Sensitivities), they have fatigue and fevers and butterfly rashes (Lupus), and they can't walk (Myalgic Encephalomyelitis and Chronic Fatigue Syndrome). Some have peripheral neuropathy (diabetes, idiopathic neuropathy), chronic pain requiring narcotics, and some have abdominal pain with menstruation (endometriosis).

Some went to 30 doctors and waited 15 years before getting a diagnosis.  Never mind how much money they spent.  And I do mind that some still don't have a diagnosis.

No one really knows what it feels like to live in a body that doesn't listen to normal commands; only the girls and ladies living in them really know. I know. It's like turning from age 30 to age 80 overnight.

I know because I was there.  I was them.  It was me.  I lived on a PICC iv line for over three years with dysautonomia, or dysfunction of the autonomic nervous system. Battery to battery, and drip to drop I lived. How ironic for an anesthesiologist, a Stanford-trained anesthesiologist and intensivist who should have been watching the drips go into my patients, not into myself. And they gave me up for dead, yet just like you, I pressed on. I argued. I fought. I was one of the lucky ones that went to the door of Heaven and had the choice to go in, or to return to earth. I wanted to raise my daughter, so I chose to come back. But never mind that. This is about you now, because I am better. My love for you abounds.

I don't know why I got to recover, why I got to live.  Why I got to get better.  But I'm never going to forget you women of great strength and tenacity.  I was you.  I am you. You are me.  I am one of you, and I always will be. I will never leave you and I promise that I will strive, for the rest of my life, to keep you front and forward in all my efforts. Anyway, how could I ever forget you? Your friendship kept me alive; your prayers kept me breathing. We co-existed in a symbiotic relationship.

That love is saved up from hospital notes I wrote with my brain injury; it is there forever for any one to see: No More Tears: A Physician Turned Patient Inspires Recovery.  You can Read Chapter One Here.  I take you to the door of Heaven with me, so read it in a quiet place. I want you to know that when I go, don't cry for me. Because I won't be crying for you. I'll be in that place where the lion lays with the lamb, where there are No More Tears. I felt it, I know where I'm going when I die, and my mission on earth is to continue to love you unconditionally. You have my word on that.

You'll be glad you read this book, because you are not alone and you never will be.
P.S.  It's not just for women.  Men are greatly affected by these diseases, too.


Epilogue: In January of 2013, Dr. Aranda was examined by a neurologist who thought she was faking illness. When he had her stand up and put her feet together, he told her to close her eyes. He said he would catch her if she fell. He did not, and she fell to the hard wood floor, away from him. She suffered another TBI with DI, and remains mostly bed-bound and disabled again, just as she once was before. Dr. Aranda continues to advocate for invisible disabilities including diabetes, and has several patents and trademarks on Preventive Medicine products to help halt the devastating complications of disease.



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To Order Dr. Aranda's books, please click here:
http://drmargaretaranda.tateauthor.com/other-works/
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For Additional Memoirs, Please Click Here:

Age 31: The Color Blue
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No More Tears en Espanol
Face Book Page: Stepping from the Edge
Little Missy Two-Shoes Likes to go to School
From Menarche to Menopause: A Journey through Time


To Order Dr. Aranda's books, please click here:

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Additional Free Articles by Dr. Margaret Aranda

Medical Disclaimer: Nothing on this website is meant to diagnose, treat, or practice medicine. You must be seen in person by a physician for appropriate and individual medical treatment. If you have an emergency, call 9-1-1 in the USA.

Link Disclaimer: We are not responsible for any links that go outside of this website.

Full Disclosure: Margaret A. Ferrante, M.D. presents this information for education and awareness.  













12 comments:

  1. What are your outlooks on other invisible illness, such as depression, bipolar, borderline, etc...?

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  2. Psychiatrists are here to help those diseases, which are not "unknown" like the ones mentioned in the blog. The outlook is good, because the DSM Manual lists all these psychiatric disorders in standard fashion. The formula is there.

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  3. Yep, I get it! Awesome! Invisible No More TV: http://www.InvisibleNoMore.tv

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    Replies
    1. Yes! Invisible No More TV is amazing and I encourage all my readers and Caring Friends to go there!

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  4. Oh! I saw this post on my dashboard and clicked on it right away because I knew I was going to like it.

    I just turned twenty and went for over five years (a forth of my life!) before we finally figured out that I had Lyme Disease in addition to several other thing (Including not being able to do anything for a while because the smell of any kind of chemical bothered me so much).

    Thankfully I had parents who were very understanding and never gave up on trying to figure out what was wrong. Having a positive mindset (especially when being misunderstood is hard!), but so important. Most of today was spent in bed with no energy to move, so it’s nice to be reminded that I’m not alone. Thanks for this post!

    ~Aidyl

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    Replies
    1. Aidyl, Hat's Off to your parents, because they are to be commended for their patience, understanding, compassion, and most especially, for just 'believing' in you! Thank you for your comment, as it is so endearing to hear how young you are and how much of your young life this has consumed. You Keep On Keepin' On, and let's hear from you now and then, Okay? We want to know how you are doing.

      Dr. Margaret Aranda
      www.drmargaretaranda.blogspot.com

      Delete
  5. Gracias Dra. Aranda por su passion a enseñarnos educarnos y compartir tan impresionantes articulos Que DIOS. La bendiga grandemente !!!!!!

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  6. El placer es todo mío, Susana! Con Dios, todo es posible y es mi alegría de ayudar a otros que están en tiempo de angustia. Dios te bendiga, también!

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  7. This is AWESOME !!! Dr. Margaret Aranda is THE VOICE for millions who are too sick to raise their own voices and be heard. God has called her to this mission and she has answered the call. Thank you Dr. Aranda!!! We look forward to seeing your book made into a movie, so it can encourage those who are too sick to read, so it can implant compassion and understanding in the hearts of those who are unaware that there is a silent epidemic, or should I say, ...an epidemic of silence where there should be voices crying out on behalf of those with hidden diseases, there should be researchers scrambling to find answers, and we should be swimming in charitable resources that are specifically designed to help and assist the victims of hidden diseases. Again, we extend to you a heartfelt ♥♥♥ THANK YOU ♥♥♥ Dr. Aranda, for answering the call !!!

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  8. "...A silent epidemic, or should I say, ...an epidemic of silence..."
    I like that. An epidemic of silence.
    I don't know why it is so, but I think you are right. Time to make some noise and be heard.
    That's what we're doing. Thank you!

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  9. Yes, an epidemic of silence! Hush, don't say a word... I agree with everything Anonymous stated in her last post. You have been called to speak for those with no voice. You've answered that call:) I look forward to reading 'No More Tears' and hope it will be made into a movie. Thank you for making noise.

    ReplyDelete
    Replies
    1. Someone has to be the one to make a little noise, indeed.
      It's good noise.

      Delete

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